Survivors report that they are upset about the possibility of CJD, but more upset by their unmet expectations of a normal life. Being short is a very difficult experience. The wounds of childhood do not necessarily heal. Being deficient of growth hormone as an adult is associated with low energy, obesity, and depression. Then add the anxiety of being at high risk for a horrible death. Many of these folks just want somebody to take responsibility and treat them today for whatever you want to call the condition. My interpretation is that they feel like abandoned guinea pigs.
How did our society allow such a horrible thing to happen? Was it hubris? President Kennedy said we'd get to the moon and so went to the moon. Why not fix poverty, engineer highways, destroy Communism, and fix broken lives with new drugs as well? Maybe greed? A 2008 French lawsuit claims that pituitaries were obtained by bribery, sloppy science, international organ trades. Was this a predictable outcome? What are we doing today that seems logical but will have long term and unintended side effects?
Science can give us choices. Some people will choose one thing, others another. For example, bohemianowl's comment on Digg.com about our story "Height & Long Life," linking short stature with a long life was: "I would rather be tall and live a shorter life."
Today I am 4-foot-10 and a half — half an inch too big to be a dwarf, but I still qualify to ride the kiddy rides at the amusement park. (Good thing – I hate roller coasters.) I loved the 1970s where some people wore tall platform shoes (me) while others wore earth shoes (never me). Besides that, though, there are few things forbidden to me; I work hard to prevent people from treating me like a child or yapping toy poodle.
I have always wondered what would have happened if only I had made it to 5 feet. Still, I have to disagree with bohemianowl — in the end I'll keep my stature, if it means I might live longer life.