Comments on: Muscular Dystrophy Drug http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/ Making Sense of Science Sat, 13 Mar 2010 20:18:46 +0000 http://wordpress.org/?v=2.5.1 By: Susan http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-2315 Susan Wed, 03 Mar 2010 19:32:55 +0000 http://www.sciencentral.com/video/?p=378#comment-2315 Hi - My nephew in AZ has Duchenne MD and is progressing very rapidly. He will turn 18 this month. Any info. or help you can provide would be appreciated. (I live in CO). I am very upset with MDA as they seem to have done very little over 30 yrs. with all the "research" and little "action" and they have over $166 MILLION IN ASSETS. My heart goes out to Tyler. Thank you. Hi - My nephew in AZ has Duchenne MD and is progressing very rapidly. He will turn 18 this month. Any info. or
help you can provide would be appreciated. (I live in CO). I am very upset with MDA as they seem to have done very little over 30 yrs. with all the “research” and little “action” and they have over $166 MILLION IN ASSETS. My heart goes out to Tyler. Thank you.

]]> By: Ali http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-2278 Ali Sat, 23 Jan 2010 20:41:47 +0000 http://www.sciencentral.com/video/?p=378#comment-2278 You can find more information on Muscular Dystrophy in: http://www.geneticsofpregnancy.com/Encyclopedia/Muscle_diseases_and_muscular_dystrophy.aspx?pid=62 This site contains information On Pregnancy Diseases And Genetic Testing. You can find more information on Muscular Dystrophy in:
http://www.geneticsofpregnancy.com/Encyclopedia/Muscle_diseases_and_muscular_dystrophy.aspx?pid=62
This site contains information On Pregnancy Diseases And Genetic Testing.

]]> By: judit http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-2175 judit Thu, 29 Oct 2009 23:33:33 +0000 http://www.sciencentral.com/video/?p=378#comment-2175 hi, it's hard to find a way to cure a hard desease, which takes many people especially children, but please do it for all those who suffer and has one dream...to run oneday, to have a walk, or to do what all healthy people are doing...thank you and God Bless You! hi, it’s hard to find a way to cure a hard desease, which takes many people especially children, but please do it for all those who suffer and has one dream…to run oneday, to have a walk, or to do what all healthy people are doing…thank you and God Bless You!

]]> By: ROOBINA http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-2152 ROOBINA Sun, 18 Oct 2009 21:01:44 +0000 http://www.sciencentral.com/video/?p=378#comment-2152 Im a 26 FEMALE with MD most likley with dmd though its more common in boys i have most symtoms. doctors have sid it's rare but have not told ME whitch MD i fall in. I have been pretty much stable up until i was 19 when i gaind 5-10lbs and had less exercise i weakend a bit. I now have 3 children and though i gained weight i was still up and walking and had them normal. I do not have therapy or a doctor that checks up on me but i have noticed that i have been getting weaker. I went to a doctor couple of yrs ago and they said that then tryed to find what type MD i had but couldn't find in the blood sample he got and said it's $1000 to do a better test cause medical doesnt pay 4it. If there might be a cure out there for me please send me info. roob1na@yahoo.com Im a 26 FEMALE with MD most likley with dmd though its more common in boys i have most symtoms. doctors have sid it’s rare but have not told ME whitch MD i fall in. I have been pretty much stable up until i was 19 when i gaind 5-10lbs and had less exercise i weakend a bit. I now have 3 children and though i gained weight i was still up and walking and had them normal. I do not have therapy or a doctor that checks up on me but i have noticed that i have been getting weaker. I went to a doctor couple of yrs ago and they said that then tryed to find what type MD i had but couldn’t find in the blood sample he got and said it’s $1000 to do a better test cause medical doesnt pay 4it. If there might be a cure out there for me please send me info. roob1na@yahoo.com

]]> By: Barbu Geta http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-2126 Barbu Geta Sun, 13 Sep 2009 18:17:04 +0000 http://www.sciencentral.com/video/?p=378#comment-2126 Va rog sa-mi raspunde-ti cind putem beneficia de acest tratament avem un copilde 9 ani bolnav de dmd duplicatie ezon 45 Cu mult respect Barbu Geta Romania Va rog sa-mi raspunde-ti cind putem beneficia de acest tratament avem un copilde 9 ani bolnav de dmd duplicatie ezon 45
Cu mult respect
Barbu Geta
Romania

]]> By: HelpSAM Blog » Blog Archive » Research http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-2119 HelpSAM Blog » Blog Archive » Research Mon, 31 Aug 2009 13:54:51 +0000 http://www.sciencentral.com/video/?p=378#comment-2119 [...] http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/ [...] [...] http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/ [...]

]]> By: David Birkaia http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-1855 David Birkaia Wed, 20 May 2009 06:17:26 +0000 http://www.sciencentral.com/video/?p=378#comment-1855 hello all. My brother has Facioscapulohumeral muscular dystropy. He is so old man, 53 years old. and there are no any treatments at the moment. If anyone knows some news about treatments or hopes to cure this disease, pls contact to me. david_birkaia@yahoo.com hello all. My brother has Facioscapulohumeral muscular dystropy. He is so old man, 53 years old. and there are no any treatments at the moment. If anyone knows some news about treatments or hopes to cure this disease, pls contact to me. david_birkaia@yahoo.com

]]> By: JP http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-1836 JP Thu, 14 May 2009 06:29:29 +0000 http://www.sciencentral.com/video/?p=378#comment-1836 Come on lets keep up the faith, please hurry up researchers one day coul mena the life of one or more kids...laminin might be the answer. thanks for teh good work JP. Come on lets keep up the faith, please hurry up researchers one day coul mena the life of one or more kids…laminin might be the answer.

thanks for teh good work
JP.

]]> By: martha http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-1832 martha Wed, 13 May 2009 20:40:19 +0000 http://www.sciencentral.com/video/?p=378#comment-1832 My bother died 16 years ago as a result of DMD, but now there is more hope for my son of 9years old. i really hope this does it. GOD BLESS YOU ALL!! My bother died 16 years ago as a result of DMD, but now there is more hope for my son of 9years old. i really hope this does it. GOD BLESS YOU ALL!!

]]> By: Kobe's mom http://www.sciencentral.com/video/2009/04/20/muscular-dystrophy-drug/#comment-1820 Kobe's mom Tue, 12 May 2009 13:38:16 +0000 http://www.sciencentral.com/video/?p=378#comment-1820 My son will be 9 at the end of this month. I am thankful for the research groups are doing. My question is how to get in on clinical trials...My prayers are with you all, especially Amjid in Pakistan. Fayetteville, AR, USA My son will be 9 at the end of this month. I am thankful for the research groups are doing. My question is how to get in on clinical trials…My prayers are with you all, especially Amjid in Pakistan.
Fayetteville, AR, USA

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