Comments on: Muscular Dystrophy Drug

By: Elfrieda Kappa

Elfrieda Kappa — Sun, 25 Dec 2011 15:51:39 +0000

Thanks for another informative site. The place else may I am getting that kind of information written in such an ideal manner? I’ve a mission that I am just now working on, and I have been at the look out for such information.

By: s.m.ahmed

s.m.ahmed — Thu, 30 Jun 2011 06:54:37 +0000

It is June-2011 now; It will be great if the status of development of Laminin-111 drug is known. May be the researchers (@ Nevada) or Dr. Hodges can can leave the INFO at MDA (USA) which where all the poor MD should looks upto.

Unfortunate father of LGMD-2A patient

By: Amit

Amit — Mon, 18 Apr 2011 01:27:38 +0000

Hi,

Please tell me where to get this drug on urgent basis. My friend need it. Kindly let me know, I am based in San Francisco and can fly to any destination to get it.

May god bless you.

Warm Regards,
Amit

By: dr chintan

dr chintan — Fri, 02 Jul 2010 17:13:45 +0000

hi i have seen your video now i have my cosin whos has muscular dystrophy i& i want to find out where this laminin 111 drug can be found please do reply fast

By: Hasan

Hasan — Sun, 13 Jun 2010 07:24:00 +0000

We are still waiting for the better cure and treatment for this disease.I have LGMD and it was diagnosed in 2006.
we hope that we could find and will be able to spend normal soon.

By: wainaina

wainaina — Mon, 29 Mar 2010 11:32:55 +0000

Hi.It is surely proper to express our gratitude to the doctors,the research community and the organisations like PPMD for puting up a good fight against MD;to those parents and families who have dedicated their resources,material and otherwise,in this struggle to contain the ravages of MD.My son was diagnosed with MD recently and i am finding ample consolation in the fact that there are good people who have put in so much in this endeavor in the full knowledge that sons of many a family will live as a result of these efforts.What u r doing,or have been doing,holds hope for many families and their sons all over the world.You are our sacred warriors in this struggle,and our prayers are with you.Wainaina,Nairobi,Kenya,East Africa.

By: Susan

Susan — Wed, 03 Mar 2010 19:32:55 +0000

Hi - My nephew in AZ has Duchenne MD and is progressing very rapidly. He will turn 18 this month. Any info. or
help you can provide would be appreciated. (I live in CO). I am very upset with MDA as they seem to have done very little over 30 yrs. with all the “research” and little “action” and they have over $166 MILLION IN ASSETS. My heart goes out to Tyler. Thank you.

By: Ali

Ali — Sat, 23 Jan 2010 20:41:47 +0000

You can find more information on Muscular Dystrophy in:
http://www.geneticsofpregnancy.com/Encyclopedia/Muscle_diseases_and_muscular_dystrophy.aspx?pid=62
This site contains information On Pregnancy Diseases And Genetic Testing.

By: judit

judit — Thu, 29 Oct 2009 23:33:33 +0000

hi, it’s hard to find a way to cure a hard desease, which takes many people especially children, but please do it for all those who suffer and has one dream…to run oneday, to have a walk, or to do what all healthy people are doing…thank you and God Bless You!

By: ROOBINA

ROOBINA — Sun, 18 Oct 2009 21:01:44 +0000

Im a 26 FEMALE with MD most likley with dmd though its more common in boys i have most symtoms. doctors have sid it’s rare but have not told ME whitch MD i fall in. I have been pretty much stable up until i was 19 when i gaind 5-10lbs and had less exercise i weakend a bit. I now have 3 children and though i gained weight i was still up and walking and had them normal. I do not have therapy or a doctor that checks up on me but i have noticed that i have been getting weaker. I went to a doctor couple of yrs ago and they said that then tryed to find what type MD i had but couldn’t find in the blood sample he got and said it’s $1000 to do a better test cause medical doesnt pay 4it. If there might be a cure out there for me please send me info. roob1na@yahoo.com